I have been on and off Neurontin for the last 4yrs. I have to take medicine for a specific health problem and often Neurontin interferes with the different types of meds that are out there for this problem and I can not take 2 anti seizure meds at once...I just cant...after trial and error I know what meds are important to me for my sanity and health and what has to go...I am so hyper sensitive to meds now. Every one that has been restarted in the last month gives me horrible side effects. I have to be able to drive my children around without fear of a car accident..every day..
It sucks for me but that is the way it is now...like it or not...I go back to my neurologist in a month after I get used to these meds I am on now. I will go up slowly on the meds I am on now and after I did research on TN one is also used to treat it..My family knows me and I changed so much on Neurontin personality wise...I wish I could take it...I really do...
Thank you for the information though...Hopefully an increase in my meds I am on now for depression and mood will help with the pain if they dont...I will rely on the support from my family and this board to get me through the worst days and laugh on the days that are good..Thanks so much for all of your support and advice...
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Originally Posted by Bi-Coastal
In my experience of 10 years with TOS, RSD, Fibro, Reynauds, Scoliosis, on & on. Neurontin is the ONLY medication I can tolerate and it DOES most assuredly help my nerve pain.
Yes, there is weight gain, but not the sugar issue (to the best of my knowledge). It will sap energy, but what else are you doing while having this pain??
I have managed to settle in to a relatively low dose. (600 mg a day). 100mg am, 200mg mid-day, and 300mg at bedtime. This is after many years of trial and error. It is possible to have too much or too little of course. Give it time and your body will adapt and hopefully need less rather than a higher dose.
I have read many posts where some have been prescribed very high levels of Neurontin. I do not know how anyone can function with too much. If the levels are 'right', you will have relief and be able to have at least partial days with some decent quality of life in them.
Neurontin, I understand, does not have an adverse reaction when combined with other medications, which is huge.
In my opinion, Neurontin is worth a try and will not 'hurt' you in the way many other 'nerve pain' medications will.
I deeply hope you all can find relief and a managable level of pain (if we must).
Please ask your physician about Neurontin.
Warmly,
Anne
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