Missy:

Wow, talk about being thorough. I see where you are referring to Alan's being Reactive at 41 and Reactive at 66. I remember questioning this (I question everything when it comes to his blood tests),and being told that Alan was negative for Lyme Disease.

Now what this means, I am completely clueless.

Alan has been on IVIG since January, starting with two times a month, then he improved so much, his doctor put him on once a month.

What helped Alan's pain between his toes (that is the only place he has PN), is we put cotton balls (or sponges initially, cut to fit) between his toes which separated them and reduced compression. His toes are all squished together. The separating of the toes help dramatically with the PN and when he walks or is active, there is no pain whatsoever. Only when he lies down and doesn't put cotton balls or anything to separate his toes, only then, does he have pain.

So exactly what treatment is your mother on that helps her? Maybe I missed it in your post.

Thanks much for being so thorough.

Melody

ANYBODY HAVE A CLUE, jump on board!!!!