Hi Kimmy,
I think many of us can relate to the being fobbed off about the pain we experience, I had two consultants that were next to useless before I was put in touch with my current consultant, who is amazing.
22 years is a long time, I'm into 5 years and I'm bilateral, I cope pretty well right now, also my helping out at the TNA-UK gives me relief as I'm surrounded by people that understand, along with my forum friends this gives me a lot of comfort knowing I have them to turn to when things are tough.

I hope your feeling good today.

Take Care
Tracy.