Hi,
We must of lost alot of our original posts prior to May. I am briefly going to tell the story of our original PCS nightmare.
My son was injured in a wrestling tournament back in February, he never lost conscousness but was dazed. He begged to go back out and finish his match. He came home looking pretty dazed and having what we knew to be a concussion. He also had a fever that night and I thought he was getting the flu. He seemed to be a bit better in a few days and kept doing school work etc. Needless to say we got terrible medical advice. This is not even negligent, there is still no real defined concussion protocols. My son plugged along with his life for about a week until he could barely walk to his classes, he had no idea what they were talking about in the classes, and he was so dizzy and nausous with terrible headaches. He was not even able to read briefly. Most of all he was so, so tired. Finally we realized he had PCS, and were told he could need several months to recover. At that time, we were lucky to get great help, a concussion specialist, neurosurgeon sports medicine MD and neuropsychologist who is a concussion advisor for student atheletes. He was pretty sick and took alot of time off from school. He finally went back to classes but did no schoolwork and then gradually over the summer had more mental stamina and clarity in his thinking. His exhaustion, gradully resolved and he was able to do more and more. He simply had more mental stamina. His dizziness and headaches gradully resolved from, all the time, to once a day, once a week, twice a month, to gone. He is now basically back to normal but I would say, he is still very vulnerable to relapse. This does make me nervous, he is doing much more than he used to, I think we can expect occas. dizziness here and there. He is doing great in school, testing well etc. WE still need to be very careful. This condition needs to be watched closely and supported, by keeping a patient calm and optimistic. I really think the prognosis is good. Now, we need to protect from reinjury, because as many of you know, you can be back on the roller coaster ride again. The reason why, I think, many of you are so frustrated with doctors, healthcare professionals etc, is there is no measuring tool for this condition's existance or progress. There is no tool, to screen for it's presense, other than symptoms. It does have a very classic symptomotogy and does exist. Once you know what you are dealing with then, at least you can stay calm and rest. It will get better!!!