I have full body versions of these sorts of spasms. They go from my jaw to my toes. They pull my feet into balls, will twist my fingers up and over the back of my hands or twist in till the nails are in my palms. They pull my thumbs up and over my hands and pull the fist in until it touches the inside of my wrist. They have dislcoated my knee, my shoulder and broken several fingers. They pull my neck down to the side and twist my spine. When they are going it hurts so so much, and even when someone touches me all they can feel is total rock hard. I find that as they kick in they take a life of their own and start twisting in ways which just shouldn't do!

I don't know anything that helps.. I find I just have to sit through them and wait for them to go. If someone tries to pull them out too much then they set the jerks off and I end up twisting more and more whilst shaking.

Hope you find something that helps!! it does suck so much!!

Frogga xxxxx