What autoimmune problems do you suffer from....I only ask because I realized an amazing link in terms of my twitching....and autoimmune issues

I was twitching everywhere it made me crazy and I had tremors. And neuropathy as well. And i took propanolol for the tremors it in addition to thryoid meds. I was taking the thyroid meds for my hashi's as i was starting to go hypo thryoid but apparently my gland was not being destroyed uniformly because part was still functioning and the other part was gone.

The more thyroid meds I took the worse i was. But the blood tests showed owtherwise...normal. And my symptoms just kept getting worse. But I did nto connect it to the thryoid or meds.

But it was my thyroid that made me twitch...it truly was causing a lot of problems...my twitching, my muscle weakness and my tremors.

Not to say that yours is similar at all but now that thryoid is gone...tremors and twitching down and almost gone all together.

Doc said I had thyrotoxicosis from my HAshi's and darned if it did not cause a lot of problems. Apparently not a lot of docs recognize it. What I have read about it is that you can test normal but as your thryoid is destroyed and thyroxine is sent into your blood stream unevenly (which is why blood tests can show norrmal) that its like little mini attacks on your muscle and the excess thyroxine changes the muscles from slow twitch to fast twitch and you twitch all over. Doc called it a myopathy. And thyroid problems are known to attacke nerves, especially arm and hand nerves. And tyrotoxicosis also attacks the muscles of the shoulders and legs/pelvis and hands the most. I was also dx with fibro but given the reversal over the last 8 weeks from the surgery I realize it might have been autoimmune all along. My doc gave me this to read.


A clinician may, however, wrongly believe that a patient who is "thyrotoxic" has fibromyalgia. The word "thyrotoxic" refers to tissue overstimulation by excess thyroid hormone. Hyperthyroid patients usually have thyrotoxic muscles. (So do hypothyroid patients who are overstimulated by taking too much thyroid hormone medication.) Weakness is the main symptom of thyrotoxic muscles, and some patients also have muscle pain. It is the patient with both muscle weakness and pain that the clinician may mistakenly diagnose as having fibromyalgia. Pain is the hallmark of fibromyalgia, and most patients also have chronic fatigue. A misdiagnosis is likely if the thyrotoxic patient describes her muscle weakness as fatigue rather than weakness. The clinician may mistakenly consider this evidence of fibromyalgia. The muscle weakness of the thyrotoxic patient, however, is easily distinguished from the general fatigue and low motor drive of the fibromyalgia patient. The fibromyalgia patient’s muscles are usually not weak in relation to her level of physical conditioning. Clinicians, including rheumatologists, must be careful to make this distinction or risk making a misdiagnosis of fibromyalgia.


CHRONIC THYROTOXIC MYOPATHY The symptom onset is very insidious, so much so that patients very often do not notice the wasting or weakness. An average of six months elapses before the diagnosis is made, as the symptoms are subtle and the progress is very gradual. As mentioned earlier, only around 30% of patients complain of neuromuscular symptoms whereas around 80% show muscle weakness on testing. Patients complain of low exercise tolerance, easy fatigability, difficulty in doing certain tasks, muscle stiffness, muscle twitching and sometimes muscle wasting. Shoulder, hand and then pelvic muscles are affected and tasks like climbing stairs, getting up from a low chair or lifting arms above the shoulders become strenuous. Due to the weakness, movements become clumsy and effortful. The degree of wasting varies among individuals.

Anyway please dont take this as me saying in anyway that your problems could be this but I know what that twitching was like and no one could help me with it. It was only after i insisted that they take out my thryoid that it decreased and is going away.

So it might be autoimmune connected. Just wanted to pass along my learning. I also posted a longer thread in the TOS and autoimmune forums of my experience.

Anyway I hope you find some relief.