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Old 09-25-2007, 03:13 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Welcome! Jimj!

Does your wife know how lucky she is that YOU are going and trying to find out things for HER? Well, she IS! Super lucky!!!!!!
It sounds like you have two issues going on here? First, getting a diagnosis locally, and second would a second exam/diagnosis by another neuro be worthwhile?

I guess, getting a teeny bit more information about what's happened to get the current diagnosis [see www/lizajane.org - for all the testing options] and then see the following sites regarding diagnostic procedures...at times it's simple, others not.. History OK? Any diabetes? Stroke? ONset was quick slow? After a bad cold or the like? What meds [you don't have to say 'doses or quantities, per-se, just what is she on? Meds for other problems? We/I ask because there is probably someone here who has gone that particular road.
http://neurotalk.psychcentral.com/sh...ad.php?t=28602
It is how neuro SHOULD decide how to test, and what to eliminate...there are a mess of more tests in the LizaJane worksheets that can be a road-map for diagnostics. Keep in mind that diagnosing neuropathies is a process of EXCLUSION, eliminating what appear to be worse issues such as MS, ALS, Parkinsons..etc. Liza Jane's sheets are a menu of what can be done, but the Poncelet article from the AAFP [Amer. Acad. Family Physicians] site is the map as to why a doc should test for THIS rather than THAT....
As for more info? Has she had a glucose tolerance test? Any tests for immune anti-bodies? Blood-work wise or spinal tap wise both....What all tests besides the basic nerve conduction test have been done...believe me, you-well SHE will know when some of the more invasive tests are done!

Nerve conduction tests for me, at first, showed LOSS, but not enuf to well 'worry about'? As the months went on I knew that more needed to be done and the then neruo was indifferent to my concerns...well, I went into 'town' and got a second opinion...It was that opinion that accellerated the testing process and confirmed diagnosis...then treatments. I had my new local neuro [first second opinion?] included in the process because I knew I could not make that drive into town every three months at the rate I was going.. I suppose I could do it now, but...? My local guy got the 'reinforcement' needed to do the treatments the Big-wig suggested and Well, I'm still kicking? Also, keep in mind that at first, nerve tests CAN and do show 'some' issues, but not much, LATER tho-they show real problems...things are at first still trying to 'work' albiet not well.

As for finding a good specialist? Just put your 'region' in the 'location' part of your profile and I will bet you that members who might be in your area will either PM you about WHO to see or avoid....Even if we aren't in your area, we can find stuff useful for your needs.

My own personal opinion is IF your current doc has no 'issues' with a second opinion- by all means do so...Expect a long wait time for an exam of a 'new' patient tho...but, IF you state that you are willing to take a cancellation and can go at the drop of a hat, it just might be worth it!

Truly tho? Do not expect miracles? A good, unbiased LOOK-see, with extra tests ordered would/should be just fine thank you! Then ask the local doc for PT after all the 'mess' is done.

Silly 's to you both for finding us, and I sure hope all of us can help! Laughing during the whole process helps get thru it...some of it can seem really surreal or absurd to those who aren't hurting? Also you can meet the very nicest people along the way! I find that really always helps! - j
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