hello

I usta wonder why WCB's idea of treatment for my CRPS was just physio therapy at first, and I still feel that the too vigorus (rough) massage started the spread for me.. I feel however that while in stage 1 and 2 this disorder has a very good chance of being stopped early on with sensible exercises, and I realy wish that I had walked more in the beginning.

http://www.ejbjs.org/cgi/content/abstract/65/5/642

I think the fact that we all actualy have diffrent underlying syndromes that have all been called RSD (to reduce confusion ) means that we all react difrently to meds, treatments, stimuli, pain, stress ectera. what might help one of us may harm another, I think we need to remind ourselves of that often when posting and tell those that are new so we are all on an even playing ground.

It is important to understand that what we read and report to our friends are in alot of cases just opinions, and we are all welcome to those after all they make us who we are. I like to add a link or two to my posts if I am talking about something contaversy or to support my thoughts and ramblings.. because thats all these are ramblings (haul that brain back to topic )

So now we got that outa the way.. I'm thinkin that Vic's theory on IRI's is pretty much on the ball, but that at a very early stage it also becomes a fine nerve disorder.. at what point of RSD does it become sympatheticly maintained pain (SMP) methinks within the first month yes? for some mabie remember we are all diffrent..

And for how long does it remain SMP for some 6 months for some forever, call it stages? mabie.. but what if it's because of the syndromes, say Sudeck's Atrophy" vs "Post Tramatic Spreading Neuralgia"??

Why do some people have swelling 24/7 when others have atrophy? and just how much diffrence should their treatments be?.. explain generalized spread.

What if the combining of the syndromes to RSD then CRPS here has in fact complicated and retarded the research and treatments not to mention possibly cures?.

Do you know what type RSD/CRPS you are? what's been labeled with your diagnosis and does it match with your symptoms, progression, treatment reactions?.. because it is also possible that the doc just labels with the most familiar term for the area too.

http://neuro.vetmed.ufl.edu/neuro/Jo...es/CPS_Art.htm

I know of several others who's progress of spread has almost matched mine and with similar injury history, thats somewhere to start. and some are research buffs that can probibly dig out old archives for similaritys and information about the "known" syndromes.

mabie we need to analize ourselves, we are a large demographic group, start comparing notes towards a comon goal and map these dystrophys. We have the ability to as the recipients of this disorder to get a unique perspective that no clinical trial or Research study has so far been able to tapp into.

And when researching remember that just because a portion of the artical is outdated or you don't agree with some things in it, dosn't mean there are not valuable insites to be gathered from it, similarly because we don't agree in all matters does not mean there is not still alot to be learned from each and every one of us.

just a thought or two.. and some questions

have a great day my friends

Sandra