Sissy... and ALL... hope things are going better....

I was hit by a car as pedestrain 10+ years ago, TBI & lots of problems began & continue... Chronic pain Big issue; I have had headaches that vary in severity, and constant back of head "pain", sensitivity you & others also described that makes sleeping or finding comfort position a challenge. (I may be repeating & apologize --Cognitive issues also continue.....esp. w/ memory)

I've seen several DR/specialists. Recently pain mgt Dr felt spasms culprit & prescribed various muscle relaxants along w/ Fiorcet, to be taken regularly, not PRN, when or as needed as I had been. Didn't work as hoped for me but possibly could help you or others?? [I've used Soma, Ativan, zanaflex; valium was best for me so still use, PRN; aslo Fiorect...I have concerns RE: tolerance. seeking better med or treatments....

I went back to my Neuro; he's been treating me for complex chronic pain & neuro disorders. He's done nerve blocks--mainly occipital, for cervical spine/neck/back of head pain, Dx'd : occipital nueralgia. He used Sarapin & Lidocaine. It helped but duration of relief varies from days to several weeks. Now, he feels Botox would be better. I also have long Hx of migraines & "mixed" headaches.

He also described condition as overexcitement of nerves (primarily in Central Nervous system with other branches of nervous systems also affected) He's tried various meds inc. Neurontin, which I couldn't tolerate; usually has to be taken at rather high dosage to be effective. Cymbalta & Lyrica, are similar, & may be better tolerated & possibly helpful, in lower doses than Neurontin. I tried but too many adverse affects.
Tho these are the most prescribed meds, others can be used "off label". some antidepressants (tricyclics, SSRI, etc) , AED's (antiepileptics), and some antipsychotic meds {that doesn't mean you're crazy, it's about finding meds/treatments that can "target" areas of brain & CNS, & balance , calm the nervous systems, while & to promote healing.

Yes, it takes time.... this process of "recovery" from TBI and dealing w/ affects of Post concussion syndrome. also much understanding, which is not always available professionally or personally.... we have to educate & inform self & others; become advocates, and intuitives, tuning into our self , listen to what our body tells us.... when to stop, relax; modify activity. Exercise is good but you may not yet be ready, or able to do all had been engaging in before.
Perhaps some other more gentle forms of excise like yoga, tai chi, chi qong ( find & do w/ a group may not be so boring?)
Focused breathing (that is part of previous mentioned "exercise" options but can be done in many other ways, forms) is reknowed for promoting "healing" & other positive benefits...

and as others have expressed, stay POSITIVE....
this can be challenge.... esp. when go thru cycles of improvement then regress.... (this has been my experience but I also have had additional head injuries - 2 more "mild" TBI this year have caused more problems for me....esp. Headaches. I just began another AED med-Trileptal. My neuro is basically prescribing for neuropathic pain but feels it will also help headaches, and what may be a seizure disorder (tho tests negative) that manifests in "drop attacks" . Long story, I've probably told in other posts.... but last friday had another attack, fell down stairs, was knocked out ..... besides another concussion & injuries, have worse headaches since. Nothing helped except Toradol injections given at ER... but that's getting off topic; this is your thread...

I hope your process and all dealing w/ TBI is forward progression.... and improvements, for BEST quality of Life...

Blessings...