Carrie,
Your poor body has been thru a lot! No wonder you are feeling the way you do. It sounds as if you have autoimmune small fiber neuropathy. Has anyone suggested IVIG to you? Also, see www.lizajane.org It has a lists of tests that can be done and it would be good to know what tests you have had done.

I really hate to say this and please folks jump in and correct me if I'm wrong. But doesn't autoimmune thyroid disease and Lupus cause neuropathy? If I am right, then there is not much sense in doing any more testing. It is just more money spent when you already know what is causing the neuropathy. Please please correct me if I'm wrong.

Autoimmune neuropathy can be treated with IVIG. Here is a quick explaination of IVIG: http://en.wikipedia.org/wiki/Intravenous_immunoglobulin

Also, you might want to see a good pain control specialist. Hope all of this helps.

Billye