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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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Always searching for clues
I just can't bring myself to believe that my good days/bad days are random. I may not find it, but I am convinced that there is a factor or factors the differentiate between the two states. Perhaps it would be of some help to list the things we do know.
For example, I know that if I get hit with a load of stress when first up and before the first meds kick in that I will have lost the morning and maybe the whole day. The meds just don't make it over the threshold.
I know that even when I'm at my best, that stress can blow me out of the water.
I know that if my blood sugar drops, ditto.
I know that the more "laid back" the day, the better I do.
I know that if I wake up at 3 AM I am much worse off than if I waken at5 AM.
-Rick
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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