 |
Member
|
|
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
|
|
Member
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
|
update
I managed to get only a mild cold, rather than sinus infection, amazing.
I've had blood tests over the past week, and they show that I have isolated pituitary suppression of ACTH, which means it's just a slow recovery from a few days of steroids in June that's knocked out my pituitary.
Also, the numbers are definitely improving. They're still suppressed, but better, and I do feel more energy returning.
HOWEVER---
I am getting disturbed by small sensations which keep pricking at me. The tips of my fingers, especially in my left hand, have developed a prickling feeling, and when I touch something lightly, just a piece of paper, for instance, the touch can be extraordinarily unpleasant.
Also, I feel like I'm always itchy. But it's not really an itch. I have longish hair, and the tips of the hairs prick my skin as they lie on it My face gets pricked, as I talk, my feet feel pricked. Each little prick leads to wanting to touch it, as if there's a mosquito to slap, or an itch to scratch, though the sensation is gnerally gone by the time I reach it. Not always.
It's really bodywide, including face. Given that my symptoms were always pretty predictable: vibrations, numbness, pain or cold in my feet, would any of you mavens out there think this is an "exacerbation"?
I think I'm wearing my neuro out. He sees me as soo much better than when I fist saw him this winter, with lots of back pain, that he'd be happy for me to just be happy the pain is better. He's a generalist. I'm wondering if it's worth going back to Latov or someone on his team, or whether pursuing more "answers" or "treatments" at this point is besides the point.
Mostly, that's what I'v been thinking. I've been worked up for just about everything in existence. And I really don't want meds.
Oh, one thing: My cholesterol has always been 200 - 250, and of NO concern to any of my doctors, because my HDL is 90 or more. That means that all the excess over 175 can be accounted for by good cholesterol. But last week when my endo checked it in his office, it was 340. He was pretty stunned, and had it repeated. It was 350 on repeat. We spoke today, and he said, given that I have so many other issus just now, he'd not pursue it, just follow it.
Could the high cholesterol bee related to the other things like the pituitary, or just the stress on my system?
I take: alpha lipoic acid, acetyl l carnitine, N- acetyl- cysteine, fish oil, dhea, 5HTP, B12, and an antioxidant combo.
__________________
LizaJane
.
--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
|