We all have a lot in common with the RSD, even if some have different things in common in trying to get it in remission.

I wonder how it would be if a thread was started where each one of us told how we ended up with RSD, how long we have had it and what we have done to help get better from it. If that was done then we could start seeing the things that are helping the most people and the people the most.

It would be nice if everyone would just read what each one has went through and no one try to put anyone down in anyway and as all said keep in mind that we are all dealing with this even though we are all different.

I do agree with you on the therapy but it just has to be done by PT'ers that know something about RSD. As far as walking, I have walked for the whole time I have had it. I walked and cried for years. My PCP kept encouraging me to keep walking and keep active.

Now I am having trouble with my feet. I did get a treatmill though so I could do some walking on it. I am doing my best to keep active to the best point that I can.

As far as the research, you are right, some is outdated but in those outdated pieces as you said you can find some things that aren't outdated and can help us get better.

I have Dr. Hooshmand's book, and I know there are people who don't like him. I have never been to him but to me it was the best investment I ever made. Some of it might be outdated but I don't think a lot of it is from what I have read.

We can all stick together and learn from each other or go our different ways and learn nothing from each other.

Allen is right also about turning the light bulb on for the Drs. I believe there are Drs. out there that will listen to us when we tell them what we feel is going on and let us put in our two cents worth. They just have to be found by each one of us.


In Hooshmand's book he says that the window is 3 to 7 months. In a way I don't believe that because if it was why do blocks help people in later stages of the RSD. I know some on here do believe it but it's just my opinion when I say I don't.

Anyway, good thread.

Ada