Dear Ali

I have the same issue! I hate being stared at but when the jerks etc kick in you feel a total idiot! I get a mix of spasms - I get the twisting deformity spasms, the shaking spasms and the jerks.. all of which make me feel like a total idiot if I am out and it starts happening. Some of my friends now play along by pretending to dribble etc so that I can feel "normal" (ok it's more embarrasing, but at least people are joking about it instead of being scared of it). I hate the really painful ones which make you yell out suddenly - always feel such a wimp after those!

Love

Frogga xxxx