Hello RSD Folks,

John the Painter here. As part of our study and search for better pain management options, Marilyn and I have been discussing her use of Trileptal to manage pain. I believe it is in the same class of drugs as Neurontin.

Marilyn had to stop taking Neurotin because the side effects finally kicked in to the extent where she could no longer tolerate them. She tried Lyrica prior to the switch to Trileptal. The Lyrica also interacted badly with her system. As mentioned in a previous introductory thread, Marilyn is not a candidate for any form of Ketamine intervention.

So, our question is this. How long can a person tolerate an anti-seizure medication(s) without blowing out the kidneys? Additionally, and just as importantly, how does long time use of the types of meds RSD sufferers use affect the body generally?

I am trying to research other reasonable choices that may help Marilyn without resorting to a more radical treatment protocol.

Please keep in mind the only pain med Marilyn uses is Trileptal. It is an anti-seizure medication as opposed to an opioid. Marilyn will not consider opioid use at this time. Years ago, Marilyn also tried the anti-depressant route for pain relief and found no help with that approach.

We would appreciate ANY input on the specific topic and any ideas generally on how you RSD bravers of that cruel world (including my wife) navigate the deep waters of your pain.