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Old 09-29-2007, 12:31 PM
Heidi L Heidi L is offline
Junior Member
 
Join Date: Sep 2007
Location: Seattle
Posts: 77
15 yr Member
Heidi L Heidi L is offline
Junior Member
 
Join Date: Sep 2007
Location: Seattle
Posts: 77
15 yr Member
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Oh dear, I totally forgot to mention that my father has PD.

I take after him in almost every way, and when I got my narcolepsy diagnosis (July) I was sure there is some connection. He's the reason I found the genetic data linked to gluten which fueled my research.
Unfortunately he's a stubborn old man and hasn't tried the diet despite the fact it changed my life. I have had narcolepsy symptoms for 40 years, and was slipping into dementia. After 3 weeks gluten-free my cognitive symptoms reversed completely and my acute narcoleptic symptoms disappeared. I'm sure my hypothalamus has a big hole in it and I'm missing a bunch of dopamine cells too, but I can think and I'm not falling asleep uncontrollably anymore. I'll probably never be perky, but it's a remarkable improvement.
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