Hi John,

I was wondering if your wife's pain team has contemplated the use of Ketamine?
This treatment is used with considerable success here in Australia where we use the inpatient sub-coma treatment as opposed to the outpatient with booster ketamine treatment sometimes used in the US or the coma therapy which is carried out in Germany.
I have had this disease for over a decade, unfortunately it was not diagnosed early enough for me to get the maximum benefit from nerve blocks etc (though they do still provide some relief) But I still have regular Ketamine infusions which I attribute my somewhat stable condition at the moment.


There are numerous articles online written about the efficacy of low dose Ketamine Therapy, some being written by Dr Graeme Correll who was the Australian doctor who brought Ketamine Infusions to the US.
I thoroughly recommend reading these.
Wishing you and your wife much luck
Tayla