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Member
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Join Date: Jun 2007
Location: NJ
Posts: 228
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Member
Join Date: Jun 2007
Location: NJ
Posts: 228
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So I went to the expert... my EMG there was largely normal (LOL)... but he still found me strange. My eyes are ok so that threw him off but I cross too easily but can hold them up. He is running a bunch of bloodwork and I go back for a SFEMG in late October. He is thinking it cannot be one thing but may be MG with fibromyalgia, polymyetis (sp), or something more muscle related. My Cushing's probably "treated" it and when that was resolved with my adrenals being removed, that is why I lost all my strength all at once. It could be that my endocrine issues wasted my muscles really badly... but he is doing tests and no diagnosis was made as yet. At least he said that whatever it is, he would not give me steroids. Thank you! I liked him.
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
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