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Old 09-30-2007, 12:42 PM
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Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
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lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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Hi Kathy (... thanks Snoopy for the message),

I've been on LDN for about 2 1/2 yrs, and have done very well on it. I agree that some doctors can be stick-in-the-mud's about prescribing, but if it ends up working for you, it is well worth any amount of effort to get it.

I was not doing well for a couple of yrs (had MS for 14yrs at that time). Generally speaking, my body and medications don't agree with each other, so I was about out of options at the time. I didn't have any huge expectations, but fortunately it helped a lot with symptoms. More importantly my EDSS went down a whole point and I've remained relatively stable since I started.

My doc wasn't keen to give me a rx either and only agreed to it when I threatened to get it off the internet. Even then, I had to do up a "risk assessment" document (which took 6 months cause I had so much brainfog), but that document was the clincher for the rx. Several people have found the information I put together helpful in getting their doctors on board. I will send you the link by pm.

Good luck, and when you do get the rx, please feel free to pm me if you have any questions or concerns.

Cherie
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