Dorrie
the multiplcity of the conditions that can be related to this disease require she and her children get the medical help they need. It is an inherited disease that has some resemblance to Als but is not related.
I repeat if lyou want to help her and the kids see that she gets the medical care they need. There are multiple problems connected to this disease.
Here is a canadian site for you to find help.
http://www.muscle.ca/content/index.php?id=995