Welcome to Neurotalk! This is a great community here. You will find that there are many people here who are going through the same frustrations you are. I am new to this community as well. I don't participate that much yet, but I do read comments that others share. There are many people here who are very knowledgable about their nuerological conditions.

I have CIDP, which is a peripheral neuropathy. I suffer from weakness in my arms and legs and extreme fatigue. I saw your post and I can really relate to your comments. It gets really tiresome after awhile trying to deal with the everyday inconveniences of a chronic illness. I am 35 and I found out that I had some sort of neurological illness about 2 years ago when I was pregnant with my daughter. I received a final diagnosis after I had the baby.

My physical limitations drive me crazy now. This is the time in my life when I need my strength and energy the most and I can barely get around the corner to do the grocery shopping. I find the doctors and social workers extremely frustrating too. There full of lousy advise. When I try to discuss alternatives to help me with strength building and increasing energy, they always say "pace yourself." Who can pace themselves? Especially with a very active 1 year old.

I'm sure it is very frustrating for you at work with kids. Kids are active. You need to be energetic to hold their attention all day and the healthy adults around never seem to understand fully what struggles you face.

I usually go to the peripheral neuropathy forum, but you may want to try the MS forum. I'm sure there are many people with there with helpful advice regarding MS specifically. These forums are great if you need to talk to someone who can relate to your experiences.

Welcome!