Quote:
Originally Posted by Cando
Hello, just wanted to say how I do appreciate all the people who post on this forum. Thank you, Steve for getting this particular thread started each week; it has been one of my favorites for some time now. I find something helpful each time I check in. Sometimes it is just knowing about the ordinary everyday things that life consists of that reminds me that there is more to life than just me and my PD. I've dropped in enough times that I consider you friends, as you share your insights, feelings, and questions. Lately, I've been feeling sort of selfish in taking all of this in while not contributing anything. Hopefully, that will change.
When I was first diagnosed, I was sad and scared. Then I thought I would just stay busy, work hard and perhaps the pd would go away if I ignored it (at least maybe not progress). My Dr. started me out right away with requip and after awhile I (my wife and family even more) was thinking the meds were worse than the desease. Now almost two years later I am disappointed with the drugs, the pd seems to have progressed faster than I expected. I have decided though that as long as possible I'm not letting pd have me but I'm going to do everything I can to keep on enjoying life.
One of the things I enjoy a great deal is this forum. I value the freedom to express my ideas and feelings with as much freedom as possible. I think this is made possible here, my thanks go to DocJohn and the moderators, also. I hope many people come here and particpate, at least at some point. I miss many of you when you don't show up. Someday, I hope I'm missed by someone.
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First of all, thanks for your appreciation of this thread!..It has been a tradition that was passed down from parkie to parkie, and passed down to me from Jaye
I can relate to what you said about how you've dealt with pd..I can remember how I felt when the word "Parkinsons" came out of that Dr's mouth..It was in the top 5 scariest moments of my life..The first year after my dx was the toughest..I didnt know whether I had lost a horse, or had found a rope..I too had decided that I would go on with my life like it wasnt there, but pd is hard to ignore..It wakes up with you every morning, and goes to sleep with you every night..With the passing of time I have been able to accept it, and live with it, and for me the meds are working ok..finally..It really does take some time to figure out what works well for us individually, and I can remember ol'cs making that point many times..It took me 3 years to get a regimen that does the job..I take a Sinamet CR 50/200, and a Mirapex .25 twice a day..I know if I did this 3 times a day I would feel even better, but at this point I am only interested in getting through the daylight hours of the day when Im active..I start getting a little funky later on at night, but its not a big deal because its almost time to go to bed by the time the meds completely wear off