Quote:
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"The Physio suggested that the balance / coordination problem is caused by a lack of confidence in her ability to walk and in the ability of those helping her to keep her upright should she fall backwards"
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the PT is full of crap!! good grief! having tension in one's leg does not eliminate the motion disorder aspect of RSD! There's an old but good article by Schwartzmann called "The Motion Disorder of RSD" that summarizes the types of problems your daughter is having very well; it is at
RSDSA.org's library
http://www.rsdsa.org/2/library/artic...ive/index.html
Author: Schwartzman RJ and Kerrigan J
Title:
The movement disorder of reflex sympathetic dystrophy
Source: Neurology. 1990;40:57-61.
I believe that the RSDSA has also recently completed a training program for physical therapists (?) online about how to treat patients with RSD.
I hope your Physio is teachable! In many ways, RSD is like MS - my aunt and cousin have MS, and the similarities in the movement problems are remarkable... the balance, coordination, problems initiating movement. Only with an overlaying fog of pain.