I would encourage you to go to a
Movement Disorder Specialist
There is a Udall Center at Duke University in Durham, North Carolina
Udall Centers are scattered across the USA (to be a Udall Center is an honor)
Here is a list of them
http://www.ninds.nih.gov/funding/res...ters/index.htm
This link has details about each location
http://www.parkinson.org/NETCOMMUNIT...=452&srcid=377
Keep posting here too at NeuroTalk. I am sure this thread will receive more postings. There are many PWPs in our Forum membership who have tons of insight they can share with you.