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Old 10-05-2007, 01:28 PM
Jaye Jaye is offline
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Join Date: Aug 2006
Location: The Left Coast
Posts: 620
15 yr Member
Jaye Jaye is offline
Member
 
Join Date: Aug 2006
Location: The Left Coast
Posts: 620
15 yr Member
Default What's really really true

Carolyn nailed it for where to get medical help.

made it up, oyster, and Karl wrote answers I wish I'd written myself. You might also check the websites of the big orgs: APDA, NPF, PDF, MJFox. NPF at www.parkinson.org used to have a checklist of symptoms to compare.

A couple more comments:

Quote:
Originally Posted by hurtsobad73 View Post
...he will think that I am just looking for an illness.
Darn right. I agree with Karl. Re-focus on wanting to know what's wrong so you can receive appropriate treatment. You hire a doctor to diagnose and treat, with your hopefully educated questions and input for decisions. YOU are in charge of your health care, but even if you were a doctor it would be foolish to diagnose and treat yourself due to lack of objectivity. Another important realization is that it takes 18-20 years after high school to make a Movement Disorder Specialist, so they'll be able to think of diseases you could have.

I would write a list to take with me that summarizes what's going on, maybe something like this:

Quote:
...I have my nights/days mixed(sleep some during day, awake at night),
My sleep patterns are reversed.

Quote:
tremors of hands are getting severe(for instance, I have noticed thqt in the last week and a half I have had a hard time grasping objects i.e. a pen, a butter knife, and a drinking glass, as well as having a hard time holdng papers in my hand{my hands shake enormously}), I have twitching of both hands, legs, mouth and for some reason I bite my tongue because of my mouth twitching, leg cramps,
My muscles shake, twitch, cramp and feel weak, enough to interfere with tasks of daily living. [How much of the time?]
Quote:
choke very easily(usually on liquids or even soft foods...it sees like they goo down the wrong tube), not sure if this an increase in saliva, but for over 3 yeaers my saliva is what I would cause thick at times. ....
I choke easily. [Doc will know to look at your saliva, if he/she thinks it's important. By the way, how's your fluid intake?]
Quote:
Wierd, eh. Depression has huanted me for many years, but more recently because it is hard for me to do anything due to extreme fatigue.....I get so tired when doing anything strenuous.
I have extreme fatigue, and that worsens my feelings of being down in the dumps much of the time.
Quote:
Also when I walk more than 20-30 minutes, my legs get very week and start to shake.
[YOU CAN WALK THAT MUCH? This doesn't fit with "extreme fatigue" etc. Do you also hold a job? Do household chores? Cook?]
Quote:
I feel like I am literally going to fall and have several times. My husband thought I was just clumsy, but he notices an increase in my falls, dropping things and running into walls and couches, end tables, etc.
My balance and coordination are impaired/messed up.

Missy, it certainly seems like you have some sort of neurological problem, but there are hundreds or thousands of reasons for tremors, and you describe bilateral action tremors, whereas we usually (not always) have tremors at 5-6 Hz beginning on one side in the hand or foot, at rest, which tend to go away (early in the disease process) when we grasp something, and which typically are not affected by alcohol intake.

Ooops I'm late or a meeting, gotta run, hope this helps. Trust us, we've told you about all we can.

Jaye
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