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Old 10-05-2007, 03:45 PM
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hurtsobad73 hurtsobad73 is offline
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Join Date: Jan 2007
Location: NC
Posts: 176
15 yr Member
hurtsobad73 hurtsobad73 is offline
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hurtsobad73's Avatar
 
Join Date: Jan 2007
Location: NC
Posts: 176
15 yr Member
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Sorry it has taken me so long to reply to all of you. I have had a hard time lately and just feel to depressed to talk about it. However, since you all have been nice enough to respond, I know I need to answer all your questions:

First of all, I was initially dx with possible MS. I was cleared of that 2 months ago by my neuro.

I have fibromyalgia which is the reason I am trying to walk. Twenty to thirty minutes does seem alot, however it isn't aggressive walking. I walk with some of my neighbors and there are 2-3 two year olds that walk with us. So there is a lot of stopping and slow walking, as well as stopping to talk with others in our neighborhood. However I still seem to sweat like I have walked miles and my legs get so weak that sometimes I have to call my husband to come pick me up when I am not that far from the house. I just can't walk anymore, my legs won't let me. They are too weak and they shake profusely. Also, when this happens and I get home, my hands are shaking tremendously as well as my legs. Total weakness in my body.

I do a little bit of household chores i.e. one load of laundry, load/unload the dishwasher and that is about it. My husband cleans the house, cooks, does all the errands and takes care of our 14 yr old son. They both are truely blessings. My son takes on a lot of responsibilities for his age. He helps me out a lot but never complains.

I do have an appointment with my neuro in about 6 months. I think I will see how my symptoms progress within this time and if they get worse or new things seem to happen, then I will get in to see him earlier. They are great about getting us in quickly. It is a university hospital clinic and once you are a patient, they are quick about appointments.

Whether my tremors are resting tremors or not, I don't know if I can answer that. My tremors don't happen much when just sitting or relaxing. But it does happen. It seems more like twitching to me though. Now when I am up or trying to hold things, I have tremors in my hands and legs that just won't stop. I can barely hold things without shaking. This morning I noticed that my arm hesitated when I tried to move it. Also my fingers where curled, but not in a fist position and I couldn't get them straightened for about 5 seconds. It was a weird feeling, but then they finally straightened out as did my arm when I moved it. What could this be?

I do not work. I haven't worked since Nov. 2003. I had to resign that job due to the many absences I had. In June of that year I had a hysterectomy due to stage 4 endometriosis and later in Sept or Oct. is when my neurological symptoms started to show. I have progressed in symptoms since then and am scared to think of what it could be. However, I know my body and I know there is something wrong. My PCP recognizes this and was surprised back in early September when I told him that there was something wrong. My body just didn't feel right. Then the twitching on one side of the body started. Sleep disturbances. It then has progressed to both sides of the body twitching and the shakes. Memory problems were a big problem in the beginning and now. I forgot how to put my manual (stick) car in park and ran into the house...oops...lol. I forgot where I was one day and sat down and started to cry. I was at a movie rental store with my husband. He eventually found me, but I just couldn't fathom how I got there. At the time I wasn't driving because of seizures. I have seizures due to severe migraines. I have since been able to get my migraines under control with the help of a migraine specialist and now my seizures are under control.

My husband says I drag my left foot. He feels that is why I trip a lot. Which may be the case. I looked at my shoes and the left is wore on the in side more than the outside and much more than my right shoe. Would that be due to dragging? My husband thinks so.

I hope I have answered all of your questions. If not please let me know. Karl, sorry I haven't responded, but I will get back to you.

Thanks to all of you for helping me. Please answer any of my questions if you can.

Missy
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Chronic Fatigue Syndrome '97, Chronic Sinusitis '97, Chronic Pain '04-present, Degenerative Disc Disease '86, Depression '88, Fibromyalgia '00, RLS+PLMD '04, Severe IBS '05 Non-Epileptic Seizure Disorder '08
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