Dear notwhatIordered:

I saw Dr. Drachman in August and he originally thought that I'd be a candidate for the reboot but I'm not. Simply because I have not exhausted all the immunosuppressant possibilities available. After 5 years, CellCept was not doing the trick. He's switched me to prograf. I continue to take prednisone daily (for the past 5 years, too).

I see Dr. D. again in February.

I've had MG since 1986 but went into a relapse in 2001 due to stress at work. For about 15 years, my symptoms were controlled with varying doses of mestinon. Then, when the relapse hit, I was started on prednisone, ivig, cellcept and a few other meds to control the side-effects of the MG drugs. Fun, eh?

Jennifer in St. Catharines, ON
36 yrs old and 4 years on LTD