Andrea,

I agree with Sandra re the swelling not being as a result of the baclofen being ceased.
There are many drugs we take that cause oedema, particularly if we sit with our legs down for any length of time. This is called dependent oedema. It may pay to check the meds she is on for details.
Dependent oedema is not usually a dangerous condition but it IS uncomfortable. If she could manage to wear some tubigrip , putting it on before she actually gets out of bed she will find it helps.
I realise that putting any compression onto RSD limbs is painful but you can desensitise to it and the pay off is worth it.

The tremors you describe beneath the skin can be helped by medication. Is she on any anticonvulsive meds like Gabapentin?
Poor Allison, she does sound so tense which is hardly surprising but this will definitely make her spasms and tremors seem much worse.
Is she having any relaxation therapy and is she seeing a psychologist?
These types of treatments won't make her better but may help to help her cope a little better.
My heart goes out to you and your little girl.
Tayla