hi

swelling - elevation of leg above heart. I had severe swelling at the beginning (2 years or so) where I developed pitting oedema from toes to half way up thighs - mum still has the measurements... (my big toe was 12cm in diameter etc). The same also happened in my arms. Even now adays with a wrecked lymph system my legs and arms still swell more if they are not elevated/ if I upset the RSD etc. Movement will help with lymph drainage as will some things like using a flotron - (but that is VERY painful) or lymph massage (also agony but mum ended up having to do it).

Desensitisation - just start doing it from the thigh down? then it would mean if the pain goes up her leg then that is still under control and you are not starting from the beginning again! which is so frustrating. (sorry answering the SKIP one here as well).

Spasms - really really painful. Mine twist, jerk, lock and jump around. I take diazipam, trihexyphenidryl and baclofen to reduce them. As someone said you can get rebound spasms from baclofen so it's always worth coming off the drug to see if that improves things or not. If it doesn't there are other muscle relaxants that can be used. Have you tried hot water and epsom salts? some RSDers swear by them. Also some of the anti convuslants help with spasms as well.

I personally wouldn't contact the hospital until Wednesday but that's just me.

Are you around this evening?

Love

Frogga xxxxx