Hi Figbean,
Welcome to Neurotalk and I am so sorry that you are in pain.
Some of your symptoms sound very familiar and similar to TOS, thoracic outlet syndrome. I am a TOSer. It presents in many ways but some of the things your describe could be TOS related.
I would like to suggest that you come over and read up on some things in the TOS forum.
At the top of our forum there is a sticky with a post of some TOS professionals. Hopefully there is someone in your area.
Below is the link to the forum
http://neurotalk.psychcentral.com/forumdisplay.php?f=24
I hope that you are able to find some answers and some relief.