Hi - thanks for thoughts... no - I'm in no way lying about anything - my mistakes in the past if anything is not emphasizing how disabling all this is, even just the basic PN symtoms (I assume they know about the constant tingling, etc. and really dont talk about how just that drives one nuts) (I dont even think I told my neuro about the fall last year out of the shower due to loss of balance, and I did major damage)... my docs have all my tests (as do I) - which are consistent from day one on the nerve damage (both NCS and sural nerve biopsy) - I think where it gets confusing is that other symtoms are so affected like my gut and back - and although they acknowledge the PN causes the intestinal problems - no neuro specialists around here in that - and GI docs either....
I do know that I only have on average about 15 seconds before I will be interrupted - so try to maximize the time - usually type out for any visit in the past current most important issues...
But again, first visit - I did ask and this doc does order IVIG - so thats a good thing... it will be a question of personality I think...
We'll see!