Dear Betsy,

I thnk because what you have gone through and what people have gone through due to the confusion of the RSD diagnosis that it is far better that we call it by the name it is now known as, CRPS. This does truly does give some hint that this IS a COMPLEX disease, which at this stage can not be blamed on any one system failure.
I believe if we could only establish why it happens in some and not others then we would be at least half way to finding a cure.
I know for some people they are not happy that it is called a "pain syndrome" as they feel it doesn't recognise all the other horrible problems associated with having it but as my doctor says "it is pain that usually brings patients to him, and it is his job to try and prevent it going any further"
love Tayla