Yes, I've had facial numbness where one spot, or one side, or the upper half of my face goes completely numb. There are no pins & needles, it just feels like it would after novocaine. This can last a day or two, or just an hour. It usually involves my lips though - I have noticed that, and my "bad" side is more prone, which is my "right" side.

I also have "tinnitus" and sometimes some hearing loss. The tinnitus is a high pitch ringing and sometimes that can drive me crazy. The hearing loss is more like I can hear my own voice really loud in my own head...These can last days and are usually a part of the high, high pain days.

My TOS has an element of "inflammation" process as was described to me by Dr. Brantigan. I may not be saying it right - but basically I came home after a stressful day - maybe riding in a car for hours for a doctor - and the pain starts rising, then the face will go numb, I can't swallow right, I have nausea, a major headache, and then the "usual" TOS symptoms follow.

Hope you'll keep stopping by - we love newbies