The one done at John Hopkins, as well as the tilt table...though the doc for that was great and said my beta blockers probly threw it off. My neuro doc called me while I was in grocery store, and said there was nothing else he could do for me. The one from Hopkins ,who said the "bulk" (?) only one being morning tremors (thats what they call them) that I could see, were probly psychiatric.

The Heart doc does want me to get a stress test due to some problems with ecg at tilt. He said "why would you think your problems were Pyschiatric" and seemed me to want to push for more answers, I wish he was my doc. I asked him how and he said "well they need to do more testing."...well who does and How do I get more? I have had so many tests the insurance comany probly had to hire a new employee just for my paperwork!!! I guess I am glad they may have found something cardiac that may be causing some sx....he also recommeded a doc for me and I have an appt set up. Kind of sad, to have to be glad a sx was found!!!!It sounds really weird but I hope you know what i mean....I have pushed and shoved my way for tests for years and have come up with nothing .....just more and more problems....

I am going to give up on things for now. I don't know what to ask for anymore, I don't know if my problems are neruological or not, but I do not that my arms are weak and can't sustain activity. I told him I would let him know if i got severly worse and that was that. I am thinking of calling back and seeing if he even knows I have fibromyalgia so that he doesn't write some dumb report up again. If it is all from fibro so be it. But why get so bad all of a sudden after so long? Oh I was dx with low Vitamin D which can cause muscle weakness, so who knows, maybe those supplements will help!!!! I guess I will wait till I fall on my face till I look further. I am too wiped out to even try anymore. All my endocrine bloodwork was great too!

Except adrenal gland still suppressed so still on cortisone, which is making me deathly depressed. She just changed me to dexamethasone in hopes of helping a little. Still thinks that is from epidural steroid shots. I am not a happy camper. if someone could just help me with the awful morning shakes and weird things I could deal with the rest. Maybe the cardiac testing will help show something. So it is good I had that tilt test. I expected more from Hopkins somehow, maybe a referral to another specialist, I really feel like I am dying when I wake up.....but then again....lets wait on cardiac tests....it feels like I am having a seizure or stroke or some kind of attack....there is no way to explain obviously............as I seem to be the only one on this planet with the problem!!!!!!!! Sorry but I am really bummed. I'll get better....the cortisone stuff has got to go!!!