Hi Betsy,


It is a good thing that we have all our personal thoughts on what this disease is called but obviously my opinion is that I don't believe it trivialises our disease but in fact describes it perfectly. As I said this is just my opinion
The word Syndrome does indeed mean there is a group of symptoms that together represent a disease and the symptom that seems to be the common denominator with us all is pain.
Here in Australia it is never called RSD anymore so all doctors and ancilliary staff refer to it only as CRPS.
Everyone who knows and cares for me are very aware of what CRPS means and those who don't, I don't care about.

Whatever it is called I just wish it would just go away
Take care
Tayla