Thank you for the reply. I read your thread and you weren't kidding about the ringer. APS is an auto-immune disease where I make antibodies that attack the membranes of my healthy red blood cells causing them to stick together and clot, basically. It also causes vertigo, migraines, heart attack, stroke, blindness, Pulmonary Embolism, DVT, gange green, limb loss, and organ failure.
My risk isn't from bleeding during the surgery, it is because they have to take me off of my twice daily injections of Lovenox (blood thinner shots) and aspirin and they are affraid with the open chest surgery and with me being off of them for a couple of days that I will have a major event. In July I landed in the hospital with a blood clot in my Jugular vein even when I was already giving myself shots. I was transfered to a large hospital and they told my husband if the blood clot dislodged I would die instantly. I was asymptomatic from my APS, except for my miscarriages--3 of them, until a year ago. I have now had 16 different procedures in my life that required me to be put under. But none since I got really sick. They also found that I have an AVM in my lung which should be repaired but they don't want to do surgery for that either. An AVM is somewhere in my lung I have an artery and a vein that connect directly instead of through capillaries. This is very dangerous for me because my clots that I get in my viens have a direct path to my arteries and cause me to get TIAs and eventually a full stroke. Normally you only get strokes from clots in the arteries in your neck, where I can have a stroke from any clot that I get.
I have a whole board of specialist that are currently working on my case. Two thoracic surgereons, anesthesiologist, hemetologist, caridiologist, oncologist, radiologist, neurologist, and a pulmonologist. I think that is everybody in the meeting. Anyway, it was deemed I need to be seen by a larger hospital that specialized in both MG and APS.
Sorry about being so wordy, I talk a lot:-)