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Member
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Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
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Member
Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
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I loved the guanethidine blocks! I was part of the trial studies here in the U.S. about 12 years ago. They give you the med. through an IV into a vein, not directly into the nerve. The only blocks I had that were into the nerve were awful. They were 13 years ago, and I ended up with a permanently twitching toe. The nerve in that toe has been causing me extra grief that I just didn't need, thanks doc! 
The guanethidine trial involved more blocks than they allow these days, from what I've heard. I got 2 blocks a week for 6 weeks to start, then 1 a week for another six weeks, then 1 every 2 weeks, etc. This went on for over six months. All totaled up, I got around 30 blocks done.
It was awesome. I had warmth in my leg for the first time in several years, and the pain level dropped enough for me to quit wearing the ROM boot for the duration of the treatment... but about 2 months after the blocks stopped, all the bad stuff came right back. I ended up back in the brace for another 5 years, and the atrophy was awful. But I will never forget that time, I look back on it with longing.
I didn't get any real relief from the first two blocks. But once it kicked in with the third, I was in heaven... I sure hope your daughter can try again. I hate to hear of Alison being in so much pain. 
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There are only two types of people in this world... those who bring you peace and those who don't.
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