Hi
Have you been to any top med people from N.Y.U. or Columbia? Sorry about the I.V.I.g. rate. Did it help you at all. Maybe if it was run properly????? Happens too frequently. As far as neuro's not listening.....well a lot of us have experienced that too.

There is a doc who is very good in my opinion, thats all it is, you may not agree but if you want his name, i will private message you, if you want. If you have seen him because he is well known, you can scratch him off the list. There is also someone else up in Columbia too. I am thinking you meant PN in your post. There is a PN board here too. Just keep scrolling down to it. Best of luck