Thread: APS, Thymoma and MG-posted in Intro to
View Single Post
Old 10-14-2007, 01:21 PM
Ro from Vermont's Avatar
Ro from Vermont Ro from Vermont is offline
Junior Member
  
Join Date: Oct 2006
Posts: 18
15 yr Member
Ro from Vermont Ro from Vermont is offline
Junior Member
Ro from Vermont's Avatar
 
Join Date: Oct 2006
Posts: 18
15 yr Member
Default Yep, Gumby... Sheila does have this
Sheila was member of an old board and thru the joys of the internet; now a very dear friend.

She was diagnosed with the APS while going thru testing for lupus, I think.
She gets IVIG for her MG, but because she uses Luvenox (sp?); Sheila goes thru this whole anticoag protocol before she can have her infusion every 6 weeks.

I know she has a message board for DVT through MSN. I'll post the link, but if it violates terms of service and disappears, then just PM me.


http://groups.msn.com/BloodClotSurvi..._whatsnew.msnw
__________________
"The name's Mya....Myasthenia"
Ro from Vermont is offline   Reply With QuoteReply With Quote