Oh mY gosh Tayla.
Your reply made me think of something.
My daughter had a gammit of medical problems. But, one trip to the doc with red dots led to a look at dots, ask a few questions, feel, and press, of course TOS symptoms flared from exam so it was thought the RSD and TOS flare from heat made the skin "dot up."

When I took my daughter home and put some fridge items away....There was a bushel of strawberries!
LOL, when I checked her I looked and said try benadryl! So the doc got $70 to say the more obvous, flare of syndroms, and Mom got home and figured out the real problem on that occasions.

ANother time a trip to the ER for a horrific flare from an IME exam by w/c doc, the ER doc said Bursitis.

I look at the doctor and said the exam included raising her arm and twisting it before I could STOP the IME doc. So her pain was taking her to the ground when he did this and cried all the way back to our town. Took her in the ER,

I said to the ER doctor, bursitis is local to a bursi area, why would it travel down the upper arm to forearm into the hand, back up under arm and into the chest with pain? Bursitis does not travel; this is a nerve flare and needs anitinflamatory, all the demerol in the world won't touch it.

So Toradol shot, the valium shot for spasms, and with in 15 minutes some relief was easing, not pain free, but de-escalation was happening. He had a discharge sheet for Motrin in his hand when I told hom NO WAY!

Another time a migraine brought on from the nerve flare in the traps into the skull left her devestated with pain. The demerol shot did not help, again I said I found in her flares that the valium and toradol helps. Finally convinced the nurse to tell the doctor what I said. They came in and took care of it and again de-escalation started. Daughter held nurses hand and thanked her for listening and helping. I never told my daughter, but the nurse wrote in the medical records, how patient smiled soon after receiving the medications!

So we try to trust the doctors diagx, but seems we also have to do our own understanding of our bodies. We could keep better track of symptoms to flares and activities and relate what may have or have not made a flare, and what helps, and what does not.

To Ihatetos, just a thought, but you said you never had tos symptoms in your face, your did not have them in one arm.
I am not saying that this at all related to or is related to TOS,
But understanding TOS,
The cervical nerve root starts at the spine, they travel into the other nerves that branch off into the traps, arms, hands, even neck and face.

Our bodies are bilaterial, a mirror. Just because you have a worse TOS side does not mean none of the other nerves on the other side are affected by TOS, they are just not primary affected.
The body does not carry a stop sign to nerve signals. You may have slight to no symptoms on the face and arm, but the nerves are one long cell and affect a lot more then we can relate to.
IE) one day wake up with an eye droop, face feels like novacain a bit; a good one is driving a car and hitting brakes fast and bracing how it sends "Zingers" down the arms into the hands POW! What a feeling. But the zingers did not go one side or the other, the sick nevers carried the hyper signals.

Not saying this is your case, but just the typical symptoms of TOS issues.
Di
Good thread