Member
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Join Date: Jul 2007
Location: California
Posts: 116
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Member
Join Date: Jul 2007
Location: California
Posts: 116
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Your symptoms are so widely varying that they could be signs of so many things--- AND possibly several different things combined. So, given the tests you've already had, I doubt there will be one single test that will determine what the possible causs, or causes, of your symptoms. The only two things that come to mind-- test wise, are an EMG/NCV and a Nuclear Bone Scan. Neither test will provide nor have the possibility to provide even, a clear cut answer for all of your symptoms.
The thing that struck me, was in your very last post where you mentioned you had been taking Neurontin on an intermittant vs constant basis. The thing with neurontin and most other meds that effect the brain and CNS is that you won't see or can expect to see much, if any, benefit from only taking it on a PRN basis. I am on 2 AED's (anti epilepsy drugs) for my seizures ; and just started Neurontin a few weeks ago for nerve pain and know from 14 years of experience (i've tried 10 AED's for seizures and a few more for nerve pain over the years) that they do not work overnight. It took me about 3 weeks to get to my goal dose of Neurontin (granted thats a long time, but i am so med sensetive I have to take things very slow) and the doctors have told me that 1) it will take a few weeks, once I get to my goal dose, to see the full effect of it and 2) in a slightly different note, it will take some time for the side effects to dissapear. This is on a continued basis--- I can't imagine that drug would be fully beneficial if not taken on a regular basis; nor would any possible side effects go away. It takes time.....
So, another thing I am wondering is that if you are still on neurotin or another medication, that some of your symptoms could possibly be side effects.
A way around pills is to get vitamins and medications in either chewable or liquid form. I have difficulty swallowing big pills too, so with my multi vitamin I take 2 children's chewable vitamins; along with any extra supplements I need (currently Vitamin C and Folic Acid).
Hang in there !
L2L
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