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Old 10-16-2007, 09:09 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Lailavia? To me it sounds as if.......

what all that's going on with you is not exactly what YOU or the docs THOUGHT is going on with you? If it is Endocrine-related...that could be a good thing, tho having thyroid issues myself I can assure you that 'fixing' things takes a LOT of honest communiction with your docs and a heap of 'tinkering'...If you read sites such as:

http://thyroid.about.com/z/js/o.htm?...e_Diseases.htm
and
http://www.endocrineweb.com/
These are complex processing organs in our body...they affect/effect just about everything?
It sounds as if the neuro docs have come to 'some conclusions', but the other docs haven't-so it's not a complete loss...DO NOT LOSE FAITH! Hopkins IS a place that looks at the WHOLE BODY/person and not the pieces....It's obvious that you are on a very messy, bad road to getting any diagnosis, but I believe that you will get one that can be dealt with..'
While I never felt that getting a whole slew of tests was the best way to spend my 'days off'? It ultimately will be THE best way to help you for the rest of your life!
And, don't forget, When THEY ask you about 'are you stressed?' Reply calmly, Well, yeah, I am, but then I can't walk normally, do basic housekeeping, hug my kids or grand kids [whatever?], Cooking is an issue of disinterest [probably the meds?] and well...wouldn't YOU be 'stressed' under similar circumstances? I believe it's part of the 'territory' in dealing with chronic pain! LET THEM KNOW that you have sorted that part out! Now urge them to TEST away! YOU want to know what the fruitcakes is going on!

Go get them tiger! 's in heaps! - j
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