Thank you all for your info shared so willingly. I will look closely and see what else we can do. I will also try to get her to chat with you guys.

We have just gotten home today from the hospital, Ashton was put in a few days ago to transition her meds from the TEC meds to other meds. Once the meds were turned off at home on the TEC the pain increased worse and moved up her leg and into her back so the Dr. put her in the hospital to control the med change and she did much better. The pain levels are at a 3 when doing nothing but double to a 6 or 8 to stand and bear weight with a walker. The Dr. tells us today she will have to work through that and continue to walk. I'm a little sad by that and concerned she feels she is done with treatment options other than meds. The TEC was in 13 days and worked great - to a point we so wish that could be perminent. The sensitivity is much better and she was able to build muscle strength and ROM - she has moved to walking with a walker and doing it pretty well to now she is in much pain and will regress I'm afraid. I will continue to look for what is next - I'm not to the point to say we will just "deal" and live with it. . . . that is the message I felt we received today from the Dr. .

Thanks again for your post!