Hi, I am having the same type of symptoms, I have fibro, but suspect ms, and I did read someplace on this wide web that there can be this type of pain with ms, b/c of the muscle spacitity. Yes it hurts, sometimes unbearably and it will make you crazy, and some dr's have this idea and some have another about what symptoms are conducive of ms or something else.
I sympathize with you, I don't have any answers for you, but I understand about how it feels and how the family or friends or coworkers, etc don't understand. The only ones who seem to understand and want to give me comfort are my puppies. They think a nap is just the ticket to feeling better. Hope you start to feel better.