Quote:
Originally Posted by cyclelops
I did an extremely detailed genealogy of my family and got a lead. The condition I am looking at is rare and very specific to a certain country and due to their, well, how should I say it....umm, homogenous population and restricted travel and 'roots' .....................
However...I suggest that all of you check out the myopathy section of neuro.wustl under hereditary myopathies, or just in general............
................I have a big concern regarding the diagnosis of fibromyalgia, which simply means, fibrous tissue, and myalgia, which means muscle pain. .......... It is medical double speak. If you have 'fibromyalgia', something is wrong, you may have a significant disease they did not test you for, as you have to get past 'gatekeeper' tests. Too many people are being labeled with that and being sold psychiatric meds for pain.
By the way, there are hundreds of hereditary sensory or motor neuropathy/myopathies. You can't just go to a doc, and say test me. You have to present a case for a specific chromosome mutation.
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cycleops,
I'm wit'cha on the 'fibro' issue. I think its a catch-all that is a precursor to
"I'd rather be fishing for trout than take this one on' -- i.e.they don't wanna have anything more to do with you.
On the other issue, there is a genetic link
to Immigrant Middle European Jewry,
(esp.after WWII)
as a hereditary clue for PN.