Hello again Andrea,


It does seem odd that meds are the first option at the moment for Ashton.
I really would discuss things like Lumber sympathetic blocks whilst the disease is so newly diagnosed. A block maybe all that is needed to re-wire the process
There are other non invasive treatments that I think would be great for her too such as Graded Motor Imagery and Mirror Imagery.
Excellent results can be gained if these are started early after diagnosis.
Can you find a Physiotherapist who is knowledgable about RSD/CRPS, who is up to date with the current treatments?
I know it does seem cruel but it is really important that she does keep moving. If you can just encourage her and reassure her that whilst there is pain, in this disease there is usually NO injury so using it will not make it worse. This is very hard to get the mind around I do know, and I feel really sad that this has happened again to someone so young.
Wishing you heaps of luck, please do not be hesitant to get second and third opinions as it will probably make a difference to her outcome.
Love Tayla


PS- forgot to mention the importance of a psychologist who specialises in pain management patients! They can be a godsend!