Magnate
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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Magnate
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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I will make one of those meetings at one point or another, Mel--
--if only to ask how we can get more input into the Neuropathy Association, which I've often criticized for being very slow to advocate for this condition as compared with organizations for MS, Altzheimer's, Parkinson's, etc. (as many here have read, LOL).
I've noticed that many people from the Association, and many of the meeting attendees, seem blissfully unaware of other places, such as this one, that have ammassed considerable databases and expertise on the topic. The Association seems to almost jealously guard what it sees as its purview. I think that needs to be opened up a little. (It would be fun if Liza Jane and Joe and I went down with you, I think.)
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