Susan:

I agree with you 100% about the pain thing. I looked at the faces of all the people at the meeting and I said "oh, right, they are going to get up tomorrow morning, cross their legs in a yoga lotus position, and start chanting".

Don't think so. I looked over at Alan, when she was talking and he looked at me and said "don't even go there". See, this might work for some people but the people with the level of pain you are talking about, well, I believe the doctor was trying to say "hey listen, we don't know why lots of people get PN, we do know it stinks, we do know that some meds work for some and some meds do not work for others, but what do you expect us doctors to do?? We are not miracle makers, so until this little miracle known as a neuropathy cure comes along, then you have to do whatever you have to do to take care of your pain".

That's the message I got from this doctor. She was a very nice, very caring woman, but until the physician themselves have PN, then and only then, can they get up and say "Oh, have you tried meditation"??? She meant well, and we did appreciate all she had to say. But I really believe the people thought they were going to hear about some new "treatment plan" for PN.

She never went into the Rebuilder, or anodyne therapy. Maybe if she comes back I can ask her.

I almost did ask her "do you have any idea what's it like to have PN for 18 years like my husband, to never be a day without any form of pain".

But she DID come and she DID try to help out as best she could. And the whole thing was videotaped. So you never know. You might just find me out there on the discovery channel some day asking my stupid question. "Do we really need a thalmus??" lol

Melody