Member
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Join Date: Sep 2006
Posts: 519
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Member
Join Date: Sep 2006
Posts: 519
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Thanks for clarifying Glenntaj,
What I really believe happened is that my CNS became vamped up from constant/severe pain from cervicogenic headaches. And this lasted for 3 years before anything was done surgically. Having CPS makes far more sense to me than having PN although I suppose I could have both. I need to get more clarification from my Neurologist. But I believe because of the spinal disorders and ongoing or subsequent pain is why she changed the diagnosis. And also because all tests were negative. Then she made mention that even with the QSART it barely showed up. And something else she said too...that I had fibromyalgia type symptoms but without having fibromyalgia! And why the anti-convulsants and anti-depressants didn't work well I just don't know. Actually, Neurontin INCREASED the burning sensations. It was only the benzodiazepenes that took the burning sensations down and opiates that helped to take the edge off what I call the mechnical type of pain. Anyway, the bottom line is just a hypersensitive CNS I guess. So, that makes my Neurologist, my Spinal PM and even my Urogynecologist all saying the same thing. So, I think she is right...that ongoing severe pain just caused some kind of central sensitization or "windup". It just never made sense to me to have small fiber PN come on all of a sudden and after surgery. The CPS makes much more sense due to the problems with the upper cervical spine levels.
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