Marie,
Are you sure she needs to drink that much gatoraide? That is a lot of sugar and calories. I believe that plain water is just fine. Also Propel, Vitamin water etc... if she wants something different. Just make sure she eats lots of salty foods.
I've been told the dysautonomia specialist at Mayo is wonderful. His name is Dr. Fischer. I've spoken with his nurse a few times and she is very nice. It takes months to get it to see him so get a referral right away if that is who you want to see. I don't know where you live but the #1 dysautonomia specialist is in Toledo Ohio. His name is Dr. Blair Grubb. Also supposed to be awesome.
llonghair, my daughter has celiac disease. I think that is where I first made the connection. She maintains a strict gluten free diet (her sister and I also have CD) but it hasn't helped her dysautonomic symptoms any. Darn!
But I agree with testing for celiac disease. Good advice.
Good luck Marie and keep us posted. Please check out the DYNA site. It has been a godsend for me.
Lisa